Another good appt!

We had another decent visit at VM today. I would say great or one of best, but I did still have to be put out...IV took two pokes... and I still have drains protruding out if my body...and rely on pain meds... We were excited to hear that one of the areas has shrunk to one-third or one-quarter its last size!!! They still switched out the drain because they hope to pull more sludge in the actual process. I still came home with three drains, but none of the drains had clogged or stop working. Actually the last drain still comes out of me at the same place but is reaching a new fluid collection on the inside... Hoping that I feel good tomorrow and continue to improve my nutrition, energy, and strength!!
It is not a good thing that everyone knows me on a first name basis...the CT scan gal, the IR nurse and techs, etc...and they ask what Aaron is doing this week...

Our little Superman is eating more varieties and textures, pulls himself up on everything and most recently started singing the "dadadadadada" song. Jacob is waiting for Aaron to look at him and just say, "Dada".

Happy Easter! He Is Risen!!

Happy Easter from the Worthingtons

 

 

 Aaron enjoying some relaxing time at Church!

 

 

Better day, in perspective...

Found this draft blog post from a few days back...sorry for delay.  Today I have felt much better! Last week was a really bad week...and hopefully the rest of this week is as good as today or better...actually looking forward to dinner tonight...appetite better than last week.
BTW...I am home...my Tues appts finished and we were sent home same day!!

Up, Up, let's get the show on the road..

We had a good talk with multiple doctors today and we are going to try a few different things.  First with the drains, we went bigger...going smaller last week didn't move us in the right direction...treading water... They seem ok but let's see how I do sleeping and how tomorrow goes when meds are back to normal. I had another iron infusion with another planned next week...antibiotics may get switched up a bit too.  Feeling ok as I head to bed. Thanks for your thoughts and prayers!!!

Back to VM

Quick update while I wait for Jacob to park the car and walk up the super steep hill at Inn @ VM. My drains have gone crazy the last few days and started leaking stinky greenish fluid at the drain sites...while the smell is enough to gag a medical professional, the wet on my clothes felt disgusting.  I have been using new burp cloths to soak up fluid... When I called this morning, they got me in first thing Tuesday...and now we are here. I will post after we see how things go.

Home and dealing

I went for a CT and drain check and things went awry after the Interventional Radiologist reviewed the CT.  After delays and procedure location change, I finally got called back and prepped for my drain check.  I asked the admit nurse what the plan was since things can change based on CT results. She read the screen and it said drain placement and tube check.  All I was expecting was tube check and was looking for an answer more like take out front drain and see what contrast does in back drain. After quite some time I finally saw the Radiologist doing the proceedure and we went over CT and drain checks from the last few months.  He saw a fluid collection heading toward my pelvic region that he wanted to drain. I had talked with Jacob and decided we did not three drains that two was enough to manage at one time. The Doc and I talked about taking out the front drain, downsizing the back drain and adding this other drain...while I did not 100% like this plan, it was my compromise.  I went to CT for drain placement and then they would take me across hall for drain check.  I told people helping get me ready about our plan and a while later I woke up in recovery.  Basically, they added a third tube, changed the front one and added a piece that hopefully helps when putting Aaron to sleep and downsized the back drain...what happened to only two drains? I was very tired and very disoriented and did not get answers to why they did what they did...or at least I don't remember...Jacob usually is there and gets all the answers, but Rodney took me this time and he dropped me in morning and picked me up at 9pm so he was not there to hear what they had to say...I had a bit of a fever so they kept me until my vitals looked ok...9pm...got home at 1am...did not get out of bed until afternoon today...pain was bad so I'd take pain meds and then accidently fall asleep during the time they were working so today has felt like one big ball of pain...hoping tomorrow is completely opposite and I feel half normal...I'd settle for 25%...
Thanks for your prayers and continue to pray for reduced pain and adequate drainage.  One good thing is that the garden hose in the back is much more flexible...but new drain 3 could interfere with wearing clothes out...give and take...praying for these drains to come out soon!!!

Visit not as expected...

Quick update to let you know a bigger one is coming when I have some lucid time...still at VM, waiting until 9pm to see if I am ok to go home...IF fever goes away and pain manageable...so far, it could literarlly either way.  Earlier had a fever of over102..._now 99...